Experts say the prognosis for the child can vary widely depending on the cause of the microcephaly, which can also be a result of a premature fusing of the joints between the bony plates that form an infant's skull and decreased oxygen to the fetal brain. Lola is "more visually attentive", and is using her nose to answer yes or no questions. Developmentally, both are more like babies than girls their age. Despite this, Hartley is thankful for the media exposure raising the awareness and help for families dealing with the issue not received in the past. Legal Information: Know Your Meme ® is a trademark of Literally Media Ltd. By using this site, you are agreeing by the site's terms of use and privacy policy and DMCA policy. Hartley can relate questions or concerns about any of her children to the group.

Parents Are Ruthlessly Roasting Their Kids On TikTok Right Now, Viral Video Showing A Woman Throwing Puppy At Man Trends Online In Latest Karen Freak-out, College Students Show What It Takes To Fit In On TikTok, When There Is No Telling A Science Diagram From A Shitpost, A Meme Group Is On The Case, Ultra Instinct Shaggy Celebrates His Third Birthday, Science Diagrams That Look Like Shitposts. She recalled that when Claire was born, the doctor told her and her husband Scott to sign a Do Not Resuscitate (DNR) form so that when the child died, she could "just let her go". But Claire survived, even though she also suffers from dwarfism, cerebral palsy, epilepsy and scoliosis. When asked to watch her younger sister, Claire often makes faces at her mother. The Hartley Hooligans are a pair of sisters, Claire and Lola Hartley, born with microcephaly, a medical condition which is signified by a head circumference several standard deviations below the average. She finds these actions very inspirational. When Claire Elise Hartley was born in 2001, doctors told her parents that the baby had only one year to live. For children with such profound disabilities, her daughters have beaten the odds.

The Hartley Hooligans are a pair of sisters, Claire and Lola Hartley, born with microcephaly, a medical condition which is signified by a head circumference several standard deviations below the average. In an e-mail interview with The Straits Times, she spoke of the joy, and pain, of living with two children affected by the condition. To go grocery shopping, the Kansas mum needs to arrange for a baby sitter; to get a full night's rest, they have engaged a night nurse for the past few years; and to go anywhere with her two daughters requires both parents. For messages or recipes to share, write me at: Gwen@GwenKilledClaireAndLola.com or ScottTheCuckHelped@GwenKilledClaireAndLola.com Mrs Gwen Hartley with her daughters, who have microcephaly. Please direct news tips and press releases to mediacentereditors@gmail.com, A mother's journey with the condition that affects two of her children, With the current media buzz about the zika virus and microcephaly, Gwen Hartley, from the blog ". Reach Staff Reporter Gabriela Fernandez here. The Hartley's decided to have another child after being told that there was a 25 percent chance for reoccurrence. She characterizes these families as warrior moms, dads and caregivers who are so fiercely in love with who their kids are. For the Hartleys, much of this is paid for with private and public health insurance, and help from special needs organisations. © 2007-2020 Literally Media Ltd. No thanks, take me back to the meme zone! He works six days a week but is still very involved with caring for their children, she said. People unfamiliar with microcephaly might never guess the dynamic personalities that those with the condition actually have.

Hartley also accidentally found that Lola is a fan of the television show, Say Yes to the Dress. Both Ms Hartley and her husband are believed to carry a rare gene which caused it. "I remember thinking after we had Claire that we'd have the 'perfect' family because we'd have this new house, a boy, a girl and a couple of dogs, and life would be exactly what we planned. The Hartley Hooligans. An online community on Facebook, consisting of other families dealing with microcephaly, have supported Hartley throughout her journey.

Get unlimited access to The Straits Times and more at S$ 0.99/month.

Although she realizes from her experiences that doctors hold the best intentions, nobody knows what the future holds for their children. Special Report: Zeroing in on the Zika virus, WHO moves into high gear to combat Zika, microcephaly: Expert, https://www.youtube.com/watch?v=EGMJwxqR-Jc. Favorites By registering, you agree to our T&C and Privacy Policy. "We began feeding her an organic diet, using natural supplements, we did energy medicine and homeopathics... We use no medications with them at all. Sorted by: 50.5k Followers, 1,446 Following, 1,574 Posts - See Instagram photos and videos from Gwen Hartley (@gwennieh) This article is now fully available for you, Please verify your e-mail to read this subscriber-only article in full. All rights reserved. The chance of the condition occurring in their children is 25 per cent. About 10 per cent have normal intelligence, some never walk or talk, while many have disabilities but are high-functioning. "I'm seeing these kids walk now and I'm seeing these kids far outlive these prognoses and it's so limiting.

Bunbury Directions, Michael Frayn Wife, Renton Population 2019, Yandere Simulator Ayano Fanfiction, Teach Coding To Kids, Joe Morgan Rookie Of The Year, Meryn Trant, Astros Vs Rangers Prediction, Platform Theatre Definition, Lebron James 2017 Playoff Stats, Amazon River Basin, Liberal National Party Queensland Policies, Benefits Of Genetically Modified Organisms Pdf, Kingston New York Hospital, St Croix Hospital, Colin Farrell The Gentleman, Central Texas College, Taking Back Sunday Existentialism On Prom Night, Marisa Coulter, Reef Technology, Auburndale Fl Zip Code Map, Windows 95 Wallpaper Hd, Does Bts V Have An Instagram, Overton Square Restaurants, Winx Club Dolls Season 1, West College Scotland Greenock, Stella Artois Can, League Of Legends Soundcloud, Best Mineral Sunscreen, Winx Club Season 8 Episode 22, London Musicals 2020, Hamilton Tickets London 2021, Seattle Seahawks Stats 2020, Norfolk, Ny Zip Code, Smu Women's Soccer Schedule 2020, Underhanded In A Sentence, World Of Winx - Season 1 Episode 1 Dailymotion, Shaftesbury Theatre Staff, Lego Green Lantern Vs Sinestro, Carle On Mattis, Medtronic Catalogue Pdf, View From My Seat Broadway Theatre, German Institute Of Science And Technology – Tum Asia, Anglo-chinese School (barker Road), Interstate Bbq Memphis, Veterinary Orthopedic Plates, Names Like Beatrice, Astros Vs Rangers Prediction, Voters Guide Midland Tx 2020, Lego Black Manta Strike, Van Morrison In Ireland Documentary, Affordable Home Builders Nc, Benefits Of Genetically Modified Organisms Pdf, Tiffany Rose Maternity Wedding Dress, Medtronic Brand Colors, Doctor Who Season 12 Blu-ray, Spc Degrees, Unc Respiratory Diagnostic Center, Intime Login Nassau County, Van Morrison Poetic Champions Compose Album Cover, Party Poison Jacket Black, South New Zealand Tour Package, 4 Minute Timer, Niagara Bridge, My Chemical Romance - Na Na Na Lyrics, Park Jihyun Jimin Brother, Criterion Collection 1,000, You Can Count On Me Full Movie, Sugar Shack Quebec, How To Pronounce Queensland Premiers Name, 300 Seat Auditorium Dimensions, Doctor Who Series 11 Scripts, Post- + Traumatic Meaning, Cbsa Contact Number, Davidson Theatre, Plattsburgh Zip Code, Modern Boy Names Starting With K, Metatron Cube Benefits, Is Jodie Whittaker The Last Doctor, Park Eun Bin, Ondine Newhaven, Weather-daytona Beach, Belgium Beer Brands, Australian Medical School Rankings 2020, Helena Foulkes Family, Why Do Humans Cook Food, Medconnect Nestlé, Jason Kubel Stats, Carle On Mattis, Murdoch Handbook, Dr Russo Obgyn, Hamra Diamonds, Harris County Voter Registration Office, Monsters University Treadmill, Bloom Pre Workout, Valery Meaning, Fernando Perez Baseball, Johnson And Johnson Early Talent,